LEMS AWARE ALLIANCE
Identifying a patient with Lambert-Eaton myasthenic syndrome is like finding a needle in a haystack...but there are clues to be found.
—Mazen Dimachkie, MD
About Us
LEMS Aware Alliance is an initiative designed to bring together key specialties associated with Lambert-Eaton myasthenic syndrome (LEMS) in order to develop information and materials that will help address important needs, including:
Raising awareness of LEMS among neuromuscular specialists and oncologists
Educating specialties about the connection between LEMS and cancer and the importance and value of early recognition of LEMS symptoms and cancer diagnosis
Creating a network of physician associates to help spread the learnings
Meet the expert panel
Mazen M. Dimachkie, MD
Professor of Neurology
Director of Neuromuscular Research
University of Kansas Medical Center
David E. Gerber, MD
Professor of Medicine (Hematology-Oncology)
Harold C. Simmons Comprehensive Cancer Center
University of Texas Southwestern Medical Center
David S.Tabby, DO
Clinical Associate Professor,
Department of Internal Medicine
Pennsylvania College of Osteopathic Medicine (PCOM)
MISSION
LEMS is a vastly underrecognized neuromuscular disorder that has been devastating to patients and their families for far too long. We know what causes the disorder, how to recognize its early signs and differentially diagnose it, and also how to successfully manage it—awareness, information, and education about LEMS have been the missing piece.
It is the mission of the LEMS Aware Alliance to shine a bright light on LEMS so that physicians from every relevant discipline and specialty will have access to the information, resources, and connections they need to promptly recognize, efficiently diagnose, and successfully treat the symptoms of LEMS, so that patients can find healing and a path forward to greater function and mobility.
Stay informed
LEMS Aware is designed to be a resource for physicians to find the latest clinical data, news, and information regarding the diagnosis and treatment of patients with LEMS. Sign up for email alerts so that we can let you know as new content—such as teaching aids, webinars, and other useful resources—becomes available.