LEMS Aware Alliance

Identifying a patient with Lambert-Eaton myasthenic syndrome is like finding a needle in a haystack…but there are clues to be found.
—Mazen Dimachkie, MD

About us

LEMS Aware Alliance is an initiative designed to bring together key specialties associated with Lambert-Eaton myasthenic syndrome (LEMS) in order to develop information and materials that will help address important needs, including:

Raising awareness of LEMS among neuromuscular specialists and oncologists

Educating specialties about the connection between LEMS and cancer and the importance and value of early recognition of LEMS symptoms and cancer diagnosis

Creating a network of physician associates to help spread the learnings

Meet the expert panel

Mazen M. Dimachkie, MD

Professor of Neurology
Director of Neuromuscular Research
University of Kansas Medical Center

David E. Gerber, MD

Professor of Medicine (Hematology-Oncology)
Harold C. Simmons Comprehensive Cancer Center
University of Texas Southwestern Medical Center

David S.Tabby, DO

Clinical Associate Professor,
Department of Internal Medicine
Pennsylvania College of Osteopathic Medicine (PCOM)

Ticiana Leal, MD

Associate Professor, Department of Hematology and Medical Oncology

Director, Thoracic Medical Oncology Program, Department of Hematology and Medical Oncology

Emory University School of Medicine

MISSION

LEMS is a vastly underrecognized neuromuscular disorder that has been devastating to patients and their families for far too long. We know what causes the disorder, how to recognize its early signs and differentially diagnose it, and also how to successfully manage it—awareness, information, and education about LEMS have been the missing pieces.

It is the mission of the LEMS Aware Alliance to shine a bright light on LEMS so that physicians from every relevant discipline and specialty will have access to the information, resources, and connections they need to promptly recognize, efficiently diagnose, and successfully treat the symptoms of LEMS. The ultimate goal of the Alliance is to help patients find healing and a path forward to greater function and mobility.